Results

Disseminate the results to patients in language that they can read and understand (e.g., plain language/multilingual summaries, photovoices) – Leverage relevant patient-centric organizations, and/or cultural and linguistic community experts.

Communication

Leverage any existing patient facing technology used during the trial to deliver key findings to participants.

Standardization

Ensure standardization of demographic data reporting for studies, such as required by clinicaltrials.gov.

Collaboration

Collaborate with patient groups with experience/expertise in developing patient friendly graphics and social media posts that can help translate the results of the study to the relevant patient population in an engaging way.

Post-study

Seek post-study feedback and overall takeaways/impressions from the study population and their supporting communities. This will help guide future and follow up studies relating to the same topic.

Acknowledgements (HCPs)

Recognize HCPs who participated in the study through acknowledgement (with permission) in publications and seek their input on the interpretation of findings, review, and revisions of manuscripts thereby giving them an opportunity to meet ICMJE criteria for authorship.

Acknowledgements (Patients)

Acknowledge the contributions of patients, their families, and supporting communities.